After completing a few simple steps, you can begin managing your health and that of your family. Please note that the email address will be the default email used for all communication on this site.
Each time you log in, you can view both a summary or specific details about the patient record you have selected. You can share this information with family members and caregivers as you wish.
Your username/email, name and any other information you provide are held in strict
confidence. We do not sell or share your information with anyone else.
The information provided here will create an individual patient health record for this person. Please note that all fields are mandatory and the name will appear in the system exactly as it is entered here.
As children grow, the will have the need for many doctors and specialists both within the Immunodeficiency spectrum and outside of it. Having one place to view and manage their health records ensures that each of these care givers has a complete picture of your child’s overall health.